Tied For Life
- Zaigham Sajid
- Mar 24, 2020
- 3 min read
People often thinks that thalassemia is a illness and they treat a thalassemia patient as a weak person but in general, thalassemia is a genetic blood disease. People born with this disease cannot make normal hemoglobin which is needed to produce healthy red blood cells. Thalassemia is not infectious and cannot be passed from one individual to another.Most thalassemia major patients require transfusions every 2-4 weeks,depending on the individual’s consumption of the infused cells. While regular transfusions greatly contribute to the quality and length of life of thalassemia major patient.
This photo essay aims to captures the life and Blood Transfusion of Thalassemia persons and to show that these people are normal people and have a normal life.
Blood transfusion of thalassemia persons in KITCC
Muhammad Abdullah, 2.5yrs, playing with his toy while Blood transfusion
17 year old, Samreen applies sunnyplast after Blood Transfusion to prevent from bacterias
Dr of KITCC examines the Blood circulation of Bloood Transfusion while Thalassemia child is looking at the blood.
A small girl at KITCC passes smile to his mother during transfusion, her mother hold her hand for better circulation
Saleh Muhammad thinking about the expenditures as he came from Sakro, Sindh for Blood Transfusion of his 1.5yrs child.
Nurse from KITCC setup a point for blood transfusion of M. Ali. He seems tired of this Blood Transfusion.
Mahnoor
Mahnoor, 11, A Thalassemia person lives a happyy and normal life with her mother and her elder sister in Green Town, Karachi.
Mahnoor is thalassemia major and have to go about 20 days for Blood Transfusion at KITCC. Mahnoor has an elder sister (she is not affected by thalassemia) and her mother brought them up as a single parent. She worked as a teacher in Oxford Islamic Scientific School to earn their livelihood. When Mahnoor was 3 months old her mother got to know about Thalassemia then she took her in many hospitals for blood transfusion and now they went to KITCC for blood transfusions. Erum Naz (Mahnoor’s mother) is exceptionally confident and independent women as she never ask for help to anyone not even from her family.
Mahnoor is watching videos on her mother's mobile to spend her time while Blood Tranfusion.
Mahnoor and Jannat playing in the lounge of their home as physical activities are better for Mahnor's health
Mahnoor is fond of playing Ludo and with other toys in her leisure hours
Mahnoor is very intelligent and count as a bright student of her school
Mahnoor recite Quran-e-Pak daily in the evening. She also memorize some verses of The Holy Quran.
Erum Naz mother of mahnoor making tea in her kitchen.
Mahnoor's manages each and everything in her cupboard and tries to make it neat and clean. he saves money too as her money saver can be sighted in bottom.
Kashif Iqbal Thalassemia Care Centre (KITCC)
Initiating work from a small room of residency in 1993 The Kashif Iqbal Thalassemia Care Centre (KITCC) has now assumed a status of full fledged Thalassemia remedical centre, promising to combat Thalassemia in Pakistan. KITCC, a place where thousands of thalassemia major and minor children are being treated and provided with high quality care. KITCC has been endeavoring hard to provide due medical facilities to thalassemia inflicted children, motivating risk families for adaption of prevention measures and raising awareness about this dreadful disease .
Neat and clean Blood Transfusion ward of KITCC. Many transfusions can take place in day at KITCC
A mother at KITCC holds a patient card of her child
Receptionist of KITCC are busy in working
LT Col (R) Syed Asif Ali, TI (MI), Chief Operating Officer of KITCC in his office.
LT Col (R) Syed Asif Ali, TI (MI), Chief Operating Officer KITCC told that, Many trusts are providing the blood transfusion to the thalassemia patients, but, they are not spreading awareness to prevent the marriages of one thalassemia minor boy with another thalassemia minor girl. KITCC has focused in spreading awareness among the people of Sindh at large and in other provinces in general. KITCC trust in working on the principle “Prevention is better than cure”
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